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Archive for June 4th, 2018

Most of you will allready know about this development, but since this morning is the first day of my radiation treatment, I thought that I would update you all. Here is the email that I sent out shortly after I knew about the regrowth.

In the interests of not having you look at me strangely when next we meet, and of course,  because I consider you to be a friend, I wanted to let you know that my menginioma has resurfaced, and that i will have to go in for targetted radiation treatment this summer. The treatments are quick and painless:  15 minutes a day,  M to F, in Toronto, for 7 weeks.  
 
The most painful part will be getting there and back, but traffic does slow down during the summer.  
There is a high probability  that I will experience fatigue as well, so forgive me if I am not my usual bouncy bubbly self.  (I have no idea how “fatigue” differs from just just needing a nap in the afternoon, which I do so enjoy) 
 
The strange looking part is that the hair on my head in the radiated area will fall out about 3 or 4 weeks into it. Regrowth may take a year or more, or if ever.  So if anynone has any good ideas or sources for weaves, partial wigs, even comb overs, bring it on! I left my wig from post- surgery in SMA, but a wig can get hot in the summer. 
 
Other than hair loss and fatigue, the doctor expects no other side effects and the progonsis is good. Our hope is that this treatment will finally stop the little bitch from creeping further across my poor knobby scarred skull.  
So the Update:
Since we have been considering replacing Ben’s almost 10 year old car for a few years now, we decided to accelerate the decision (an almost pun):  last night we bought a low mileage grey Lexus 350 RX to make the drive into Toronto easier.  I am not really a car person,  but this is one sweet ride (custom interior, best sound system, shiny sparkly wheels, oh my.)    I will spend the drive into Toronto with my head in the manual, trying to figure out how the audio system works.
I have already had a consultation with Lora, the warm and friendly owner of Medical Wigs here in Oakville.  I saw Lora almost 2 years ago when I bought a wig* to cover my head which had been completely shaved off before my tumor surgery. (See my blog from the summer of 2016 for the photos. I have a happy but strange smile.  The photo below, taken at my brother’s wedding, is with about 2 months growth).
She is still dispensing wig wisdom, and has assured me that I can have a hair piece made to cover the roughly 12x10cm blank spot and that it will enhance my overall look by adding height, readimade curls, and beautiful bouncy shine.  There you go, we have made lemonade.
Onward! 
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The Road Travelled Well” blog
* The “Miley Cyrus” model at the height of her twerking nonsense – women with greater sensibilities than mine refused to buy it based on the name. I thought it was mildly amusing.

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